Nairobi, Kenya, September 2 (IPS) – A new dawn has come, and it was through the work of Yohei Sasakawa, the World Health Organization’s goodwill ambassador for leprosy eradication and the Sasakawa Health Foundation.
Franস্টois Pinto, the Vice National Coordinator of the Movement for the Reconstruction of People with Leprosy and Hansen’s Disease, said in a webinar on the theme ‘Hansen’s Disease / Leprosy as a Human Rights Issue’.
Sasakawa and Dr. Alice Cruz, UN Special Rapporteur on the Elimination of Discrimination against Leprosy, and members of their families attended the webinar. Guests included Caroline Teixeira, Miss World Brazil 2021 and Julia Gamma, Miss Universe Brazil 2020. He was co-convener of the Sasakawa Health Foundation in association with Morhan. The event is part of a 10-month-long campaign called ‘Don’t Forget Leprosy’.
Celebrity guests applauded her feelings.
Gammao, who worked with Morhan, told IPS: “There is a cure for Hansen’s disease, and I believe that is the case with superstition. I will use my voice to make sure that those who were silent are being heard. I believe unity is our strength, and together we can eradicate Hansen’s disease.
Pinto praised Sasakawa’s lifelong commitment to improving the lives of those affected by the disease.
“We were simply taught to take what was told: take medication, make appointments, open your mouth to check if you have taken medication, do not give up treatment,” Pinto said. This changes when Sasakawa is involved.
Pinto pleaded to hear, see and engage in leprosy efforts to cure leprosy sufferers.
Thus, he praised Sasakawa and the Foundation for “always talking about us and being included in our debates” and for “really listening to us and giving us a voice”. “Don’t forget Hansen’s disease,” Pinto appealed to the world community. Don’t forget us. ”
The focus of the discussion was to draw the world’s attention to a disease, a medical and social problem in equal measure. Moreover, the meeting was a key platform where participants were urged to communicate on leprosy as a human rights issue.
Although the combined efforts of the World Health Organization today have resulted in less than one case of leprosy in a population of 10,000, at least 200,000 new cases are reported each year, experts say leprosy is still a concern.
“More than one billion people in the world live with disabilities, including those with leprosy. We need to build an inclusive society where everyone can have an education, get a job and get married if they want to. People have passion and motivation. Often, Their lack is just an opportunity, ”Sasakawa said.
The government’s efforts to respond to Covid-1 to are believed to have hampered progress towards zero leprosy.
“People with leprosy face multiple discriminations. Like leprosy, they are often discriminated against for a variety of reasons, including gender, age, poverty, disability, sexuality and race. They fight state and society violence and interpersonal violence,” Cruz said.
“There is such potential and potential in the world and everyone’s participation in society will create a truly wonderful future. That’s why it’s important for people with leprosy to have confidence and talk, ”Sasakawa stressed.
“To support them, the Sasakawa Health Foundation and The Nippon Foundation are helping to build their organizational capacity. I want to see a society where everyone is active, able to express their views to the authorities with confidence and their contribution is valued.
For more than ten months, the campaign, which uses Sasakawa’s 20th anniversary as a goodwill ambassador, will raise awareness of why the world should focus on leprosy.
“It is a great honor to be elected Miss World Brazil and thus become an ambassador for the fight against Hansen’s disease in Brazil,” Texira told IPS.
“In the coming days, I will be part of the Morhan delegation visiting several cities in the north of the country, sensitizing the government to take steps to protect the rights of the affected people. We must bring together many voices so that Hansen’s disease is not forgotten, “he said.
Yet, without treatment, leprosy can lead to permanent disability. Worldwide, the WHO estimates that leprosy affects three to four million people with some form of disability.
There is a growing concern that covid-1 and fear of discrimination could prevent people from going to more hospitals, leading to delays in diagnosis and treatment.
As such, the WHO’s 2020 figures show an estimated 100 percent drop in new leprosy diagnoses, which experts warn will lead to an increase in leprosy infections and more cases of disability.
Discrimination and stigma remain a primary concern for Sasakawa. He decrees that “those who should be part of society are isolated in troubled colonies. The more you look at it, the more you will see their restrictions, which in some cases include legal restrictions. Isn’t it strange that someone recovers from the disease?” Can’t take their place in society?
“It simply came to our notice then that if the human rights situation was not addressed, it would not be possible to eradicate leprosy in the true sense of the word. I want to create a society where everyone feels involved, able to express their views and is appreciated. The coming era must be one of diversity and for that we need social inclusion. ”
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© Inter Press Service (2021) – All rights reservedOriginal Source: Inter Press Service